I don't have much to report this week on Cole. Marcia went to their house to wash our clothes.
I had to run the QGMA final golf tournament. That along with the hassle as the consequence of our house fire, have really messed up our time with Cole, Cale and Erin.
Marcia did bring back a good report of Cole's talking and word associations. She said he greeted her with 'hi Granny, where's Pappy?" He told her he had "been sweet boy" and told her "I'm green" referring to pre-k. He had not been in trouble. Marcia said he talked constantly and wanted her to read his books to him. He and Cale are tough pair to handle. Marcia was worn out when she got back to the cabin.
I will have more to report on Cole next week for sure. Hope everyone will give it a look and keep him and all fragile X children in your thoughts and prayers. We are fortunate that Cole seems to have mild Fragile X syndrome. Some parents and families face much more dire circumstances.
A cure for Fragile X is possible and treatments are improving. Fragile X is a leading cause of Autism and between the two millions of children are affected.
There are no warning signs for Fragile X which is a genetic disorder or for Autism. It can happen to anyone's child.
There are many childhood disorders and diseases and all need our support through charities to fund research and treatments. The Sunshine Lady Challenge by the Doris Buffet Foundation will match funds up to $500,000.00 for all funds FRAX raises between now and January 31, 2011. In some way this will help my grandson, Cole Baker. It will help thousands of other families even more as they deal with a lifetime of supporting and caring for children debilitated by Fragile X Syndrome.
Please consider FRAXA.org as you make holiday gifts this year. Why give a tie or sweater when you can offer a the gift of a helping hand? If not FRAXA.org then one of the many children's charities such as St. Jude's hospital.
More about Cole and his progress next time.
Thanks for your time and we hope that everyone has a great holiday season.